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The trajectory of tolerance for wandering-related boundary transgression: An exploration of care staff and family perceptions

journal contribution
posted on 17.05.2018, 00:00 by M MacAndrew, E Beattie, Maria O'Reilly, A Kolanowski, C Windsor
Purpose of the Study: This study aimed to explore the experience of living with and caring for a person with dementia who wanders and transgresses boundaries into out-of-bounds and potentially hazardous areas (wandering-related boundary transgression [BT]), from the perspective of family members and care staff. Design and Methods: This descriptive qualitative study utilized four focus groups with care staff (n = 28), one with family members (n = 4), and individual interviews (n = 8) with family members. Content analysis generated key concepts that formed the basis of the development of a theoretical understanding of the experience. Results and Implications: Care staff and families described wandering-related BT as a common dementia-related behavior in residential aged care (RAC). Drawing on the generated concepts, a complex theoretical trajectory of tolerance for BT was developed. At one end of the trajectory, BT was perceived as being beyond the control of the individual and when unwitnessed by others, having little or no impact. Tolerance for BT shifted when the BT was witnessed by others, and potentially unsafe consequences for the person who wanders or their coresidents were experienced. Under the latter circumstances, BT was perceived as a troubling behavior that needed more effective management. Underpinning the complexity of this behavior was a constantly shifting perception of how hazardous this behavior might be, a factor that appeared to contribute to the challenges faced by families and care staff.

Funding

Category 2 - Other Public Sector Grants Category

History

Volume

57

Issue

3

Start Page

451

End Page

460

Number of Pages

10

eISSN

1758-5341

ISSN

0016-9013

Publisher

Oxford University Press, USA

Peer Reviewed

Yes

Open Access

No

Acceptance Date

15/08/2015

External Author Affiliations

Queensland University of Technology, The Pennsylvania State University

Era Eligible

Yes

Journal

The Gerontologist

Usage metrics

CQUniversity

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