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The burden of the 'ra ra' positive : survivors' and hospice patients' reflections on maintaining a positive attitude to serious illness

journal contribution
posted on 06.12.2017, 00:00 by Pamela McgrathPamela Mcgrath
This article seeks to make a contribution to fostering work on the neglected area of research about how individuals maintain a positive outlook during their confrontation with serious illness. Insights are presented from both haematology survivors and hospice patients about the factors that hinder and facilitate their capacity to ‘be positive’. Patients and methods: Open-ended interviews with 14 hospice patients and 12 haematology survivors on their construction of meaning in the face of serious illness were audio-recorded, transcribed verbatim and thematically analysed. The findings on the topic of maintaining a positive outlook are presented in this article. Main results: Although the participants affirmed the value of a positive perspective on their illness experience, they were critical of unwanted pressure from others to be positive: a phenomenon they called the ‘RA RA’ positive. Such pressure interfered with the natural process of continually having to re-negotiate a positive outlook through exploring the fullness of feeling, both positive and negative. The participants indicated that at times of relapse or worsening physical condition they had to cycle through a process of despair/negativity and re-adjustment before they were able to find the positive. The process could not be rushed and required freedom from an imposed pressure to be positive. Conclusions:The essential message is that a positive outlook cannot be imposed but requires a nurturing orientation that allows the expression of a full range of feelings in a supportive environment.

Funding

Category 1 - Australian Competitive Grants (this includes ARC, NHMRC)

History

Volume

12

Issue

1

Start Page

25

End Page

33

Number of Pages

9

ISSN

0941-4355

Location

Berlin, Germany

Publisher

Springer-Verlag

Language

en-aus

Peer Reviewed

Yes

Open Access

No

External Author Affiliations

Faculty of Arts, Health and Sciences; TBA Research Institute;

Era Eligible

Yes

Journal

Supportive care in cancer.

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