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Rheumatic heart disease in pregnancy: Strategies and lessons learnt implementing a population-based study in Australia

journal contribution
posted on 14.04.2021, 01:58 by Geraldine Vaughan, Kylie Tune, Michael J Peek, Lisa Jackson Pulver, Bo Remenyi, Suzanne Belton, Elizabeth A Sullivan
Background The global burden of rheumatic heart disease (RHD) is two-to-four times higher in women, with escalated risk in pregnancy. In Australia, RHD is found predominantly among Aboriginal and Torres Strait Islander peoples. Methods This paper reviews processes developed to identify pregnant Australian women with RHD during a two-year population-based study using the Australasian Maternity Outcomes Surveillance System (AMOSS). It evaluates strategies developed to enhance reporting and discusses implications for patient care and public health. Results AMOSS maternity coordinators across 262 Australian sites reported cases. An extended network across cardiac, Aboriginal and primary health care strengthened surveillance and awareness. The network notified 495 potential cases, of which 192 were confirmed. Seventy-eight percent were Aboriginal and/or Torres Strait Islander women, with a prevalence of 22 per 1,000 in the Northern Territory. Discussion Effective surveillance was challenged by a lack of diagnostic certainty; incompatible health information systems and varying clinical awareness among health professionals. Optimal outcomes for pregnant women with RHD demand timely diagnosis and access to collaborative care. Conclusion The strategies employed by our study highlight gaps in reporting processes and the opportunity pregnancy provides for diagnosis and re/engagement with health services to support better continuity of care and promote improved outcomes.

Funding

Category 1 - Australian Competitive Grants (this includes ARC, NHMRC)

History

Volume

10

Issue

6

Start Page

480

End Page

489

Number of Pages

10

eISSN

1876-3405

ISSN

1876-3413

Location

England

Publisher

Oxford University Press (OUP)

Language

eng

Peer Reviewed

Yes

Open Access

No

Cultural Warning

This research output may contain the names and images of Aboriginal and Torres Strait Islander people now deceased. We apologize for any distress that may occur.

Acceptance Date

02/06/2018

External Author Affiliations

Menzies School of Health Research, Darwin; Western Sydney University; University of Technology Sydney

Era Eligible

Yes

Medium

Print

Journal

International Health

Exports