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Research with vulnerable families caring for children with life-limiting conditions

journal contribution
posted on 06.12.2017, 00:00 by M Stevens, B Lord, S Nagy, E O'Riordan, Marie-Therese Proctor
Methodological challenges associated with sensitive research, such as research with vulnerable families, have been well described, but there are few examples of how such challenges have been addressed in specific projects. To help address this gap, we describe how we designed and conducted a qualitative study of 91 members of 29 families caring for children or young people with life-limiting conditions. Although some issues associated with researching sensitive topics were anticipated, others were encountered that were not expected. We discuss insights gained from this study in relation to factors that influence effectiveness of recruitment, the quality of data collection, and the safety of participants and researchers.

Funding

Category 2 - Other Public Sector Grants Category

History

Volume

20

Issue

4

Start Page

496

End Page

505

Number of Pages

10

ISSN

1049-7323

Location

London

Publisher

Sage Publications

Language

en-aus

Peer Reviewed

Yes

Open Access

No

External Author Affiliations

Children's Hospital at Westmead; University of Technology, Sydney;

Era Eligible

Yes

Journal

Qualitative health research.