File(s) stored somewhere else

Please note: Linked content is NOT stored on CQUniversity and we can't guarantee its availability, quality, security or accept any liability.

Patients describe their lived experiences of battling to live with complex regional pain syndrome

journal contribution
posted on 27.09.2021, 05:14 authored by Colleen Johnston-DevinColleen Johnston-Devin, Florin Oprescu, Marion Gray, Marianne Wallis
Complex regional pain syndrome (CRPS) has never comprehensively been examined from a lived experience perspective. Patients generally have a poorer quality of life than people with other chronic pain conditions. This study aimed to understand the essence of living with CRPS. Data were collected from 17 patients via in-depth interviews. Hermeneutic discussions with four health professionals generated deeper insights. Internet blogs and a book containing patient stories were included for theme verification and triangulation. CRPS is seen as a war-like experience and five themes were identified within the battle: "dealing with the unknown enemy", "building an armoury against a moving target", "battles within the war", "developing battle plans with allies" and "warrior or prisoner of war". Patients live with a chronic pain condition and experience problems unique to CRPS such as fear of pain extending to other parts of their body. Use of the model generated by this research may assist patient/clinician interactions and guide therapeutic discussions. Support for people living with CRPS does not always exist, and some healthcare professionals require additional education about the condition. Better health outcomes are experienced by patients when their personal situation and experiences are heard and understood by health care professionals. PERSPECTIVE: This article presents the lived experience of CRPS. This information and the model generated can help clinicians to better understand their patients and deliver appropriate patient-centered care.

History

Volume

22

Issue

9

Start Page

1111

End Page

1128

Number of Pages

18

eISSN

1528-8447

ISSN

1526-5900

Location

United States

Publisher

Elsevier

Additional Rights

CC BY-NC-ND 4.0

Language

eng

Peer Reviewed

Yes

Open Access

No

Acceptance Date

16/03/2021

External Author Affiliations

University of Southern Queensland; University of the Sunshine Coast

Era Eligible

Yes

Medium

Print-Electronic

Journal

Journal of Pain