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Missed opportunities : nursing insights on end-of-life care for haematology patients

journal contribution
posted on 06.12.2017, 00:00 by Pamela McgrathPamela Mcgrath, Hamish HolewaHamish Holewa
There is now extensive consumer research to indicate that patients with haematological malignancies are not receiving appropriate or timely referrals to the palliative system. This paper begins to explore the issue from the professional perspective by presenting findings from haematology nurses on their experience with terminal care. The nursing insights have been gathered through open-ended interviews with a national sample of nurses with extensive experience in haematology in both public and private hospitals throughout Australia. The findings resonate with the previous consumer research in that all the acute care nurses affirmed that it is their belief, based on their professional experience, that patients from these diagnostic groups typically die in the acute ward dealing with escalating technology and invasive treatments. For some, the statements could be qualified by the satisfaction that they worked in a haematology unit, aware of the death-denying issues, trying to address the problem. Others, caught in a ‘refractory’ subculture (i.e. a subculture with a negative perception of palliative care), outlined the factors driving the lack of integration for their specific hospital. The focus of the discussion of findings is on the latter.

Funding

Category 1 - Australian Competitive Grants (this includes ARC, NHMRC)

History

Volume

12

Issue

5

Start Page

295

End Page

301

Number of Pages

7

eISSN

1440-172X

ISSN

1322-7114

Location

Australia

Publisher

Blackwell

Language

en-aus.

Peer Reviewed

Yes

Open Access

No

External Author Affiliations

Faculty of Sciences, Engineering and Health; TBA Research Institute;

Era Eligible

Yes

Journal

International journal of nursing practice.