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An intense and unforgettable experience : the lived experience of malignant wounds from the perspectives of patients, caregivers and nurses

journal contribution
posted on 06.12.2017, 00:00 authored by Susan AlexanderSusan Alexander
Malignant wounds occur infrequently, but are typically described as devastating and overwhelming. However, there has been little formalised research, and the vast majority of existing malignant wound literature comprises reports of health care professionals from their management of the physical symptoms. Few studies have investigated the lived experience from the perspectives of patients and nurses and none have investigated the experiences of lay caregivers caring for a patient with a malignant wound. As a result, there has been little mention in existing literature of the non physical issues associated with malignant wounds or how they might be addressed. The purpose of this study was to address this gap in knowledge by investigating the lived experience of malignant wounds from the perspectives of those living it. In-depth interviews were conducted with patients, caregivers and nurses. The data were analysed thematically within a hermeneutic phenomenological methodology to show four themes: (i) malodour; (ii) new mode of being-in-the-world; (iii) still room for hope and (iv) enduring memories. Although this study confirmed previous findings that malodour was one of the worst aspects of malignant wounds, it was significant that the other three themes occurred in the previously largely overlooked psychosocial domain.

Funding

Category 1 - Australian Competitive Grants (this includes ARC, NHMRC)

History

Volume

7

Issue

6

Start Page

456

End Page

465

Number of Pages

10

ISSN

1742-481X

Location

United Kingdom

Publisher

Blackwell Publishing Ltd

Language

en-aus

Peer Reviewed

Yes

Open Access

No

External Author Affiliations

Institute for Health and Social Science Research (IHSSR);

Era Eligible

Yes

Journal

International wound journal.