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Acceptability and willingness to participate in the Tailored Activity Program: Perceptions of people living with dementia, their care partners and health professionals

journal contribution
posted on 31.05.2021, 04:38 by Sally Bennett, Catherine Travers, Jacki Liddle, Sandra Smith, Lindy Clemson, Maria O'Reilly, Michelle Allen, Kate Laver, Elizabeth Beattie, Lee-Fay Low, Claire O'connor, Laura N Gitlin
Objectives: The Tailored Activity Program (TAP) is an evidence-based occupational therapist-led intervention for people living with dementia and their care partners at home, developed in the USA. This study sought to understand its acceptability to people living with dementia, their care partners, and health professionals, and factors that might influence willingness to participate prior to its implementation in Australia. Methods: This study used qualitative descriptive methods. Semi-structured interviews were conducted with people living with dementia in the community (n = 4), their care partners (n = 13), and health professionals (n = 12). People living with dementia were asked about health professionals coming to their home to help them engage in activities they enjoy, whereas care partners' and health professionals' perspectives of TAP were sought, after it was described to them. Interviews were conducted face-to-face or via telephone. All interviews were recorded and transcribed. Framework analysis was used to identify key themes. Results: Analysis identified four key themes labelled: (i) TAP sounds like a good idea; (ii) the importance of enjoyable activities; (iii) benefits for care partners; and (iv) weighing things up. Findings suggest the broad, conditional acceptability of TAP from care partners and health professionals, who also recognised challenges to its use. People living with dementia expressed willingness to receive help to continue engaging in enjoyable activities, if offered. Discussion: While TAP appeared generally acceptable, a number of barriers were identified that must be considered prior to, and during its implementation. This study may inform implementation of non-pharmacological interventions more broadly.

Funding

Category 1 - Australian Competitive Grants (this includes ARC, NHMRC)

History

Volume

21

Issue

3

Start Page

259

End Page

273

Number of Pages

15

eISSN

1839-5252

ISSN

1443-9646

Publisher

Cambridge

Language

en

Peer Reviewed

Yes

Open Access

No

Acceptance Date

02/09/2020

External Author Affiliations

University of Queensland; University of Sydney; Flinders University, Queensland University of Technology; University of New South Wales; Drexel University, USA

Era Eligible

Yes

Journal

Brain Impairment

Article Number

PII S1443964620000157