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A systematic review of hospital experiences of people with intellectual disability

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journal contribution
posted on 06.12.2017, 00:00 by T Iacono, C Bigby, Carolyn Unsworth, J Douglas, P Fitzpatrick
BACKGROUND: People with intellectual disability are at risk of poor hospital experiences and outcomes. The aims were to conduct a content and quality review of research into the acute hospital experiences of both people with intellectual disabilities and their carers, and to identify research gaps. METHOD: A systematic search was conducted of primary research between 2009 and 2013 that addressed the experiences of the target group in general acute care hospitals. Quality appraisal tools yielded scores for quantitative and qualitative studies, and overarching themes across studies were sought. RESULTS: Sixteen studies met inclusion criteria. Quality scores were 6/8 for a survey, and 2/11-9/11 (mean =5.25) for qualitative studies/components. Content analysis revealed seven over-arching themes covering individuals' fear of hospital encounters, carer responsibilities, and problems with delivery of care in hospitals including staff knowledge, skills and attitudes. CONCLUSIONS: Our review of eligible papers revealed that despite 20 years of research and government initiatives, people with intellectual disability continue to have poor hospital experiences. The need for research to identify and investigate care at specific points of encounter across a hospital journey (such as admission, diagnostic testing, placement on a ward, and discharge) as well as to include people with a diversity of disabilities is discussed in terms of potential to influence policy and practice across health and disability sectors.

Funding

Category 3 - Industry and Other Research Income

History

Volume

14

Start Page

1

End Page

8

Number of Pages

8

eISSN

1472-6963

ISSN

1471-2458

Location

United Kingdom

Publisher

BioMed Central

Language

en-aus

Peer Reviewed

Yes

Open Access

Yes

External Author Affiliations

La Trobe University; TBA Research Institute;

Era Eligible

Yes

Journal

BMC health services research.