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A qualitative systematic review of caregivers’ experiences of caring for family diagnosed with schizophrenia

journal contribution
posted on 06.09.2021, 04:10 by Michelle L Cleary, Sancia West, Glenn E Hunt, Loyola McLean, Rachel Kornhaber
Objective: To synthesise qualitative research that explored caregivers’ experiences of caring for family diagnosed with schizophrenia. Methods: Electronic databases including PsycINFO, PubMed, CINAHL and Scopus were searched to identify relevant journal articles published from 2000 to March 2019. Quality was assessed and thematic synthesis of the qualitative research evidence undertaken. Papers were screened and independently appraised by two reviewers using The Critical Appraisal Skills Programme (CASP) for Qualitative Studies Checklist. The review was guided by Thomas and Harden's framework for thematic synthesis of qualitative research evidence. Results: The breadth of information across the 43 papers was noteworthy. Review of the findings noted that almost all of what was discussed fell into three broad themes: the ‘feelings’ of the caregiver towards their role, the patient and others, including the health system; the ‘impacts’ of the diagnosis and their caregiving role on the caregiver; and the ‘needs’ of the caregiver to improve the patient’s quality of life and thereby the caregiver’s quality of life. Within needs also came recommendations for future changes. Conclusion: Studies have shown that the caregiving process is a complex one, with both negative and positive emotional reactions, societal barriers, such as stigma and isolation, and unmet needs, such as timely, relevant and helpful information. Meeting the needs identified by caregivers has the capacity to address the impacts of the illness and caregiving and thereby reduce the negative feelings associated with the caregiver role.

Funding

Category 3 - Industry and Other Research Income

History

Volume

41

Issue

8

Start Page

667

End Page

683

Number of Pages

17

eISSN

1096-4673

ISSN

0161-2840

Location

England

Publisher

Taylor & Francis

Language

eng

Peer Reviewed

Yes

Open Access

No

External Author Affiliations

University of Sydney; University of Tasmania

Era Eligible

Yes

Medium

Print-Electronic

Journal

Issues in Mental Health Nursing