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Consumer experiences and predictive genetic testing
chapter
posted on 06.12.2017, 00:00 authored by Sandra TaylorSandra Taylor, S Treloar, K Barlow-Stewart, M Otlowski, M StrangerThis paper presents an overview of predictive genetic testing in Australia and reviews key literature regarding the complexity of the decision to undertake predictive genetic testing, including concerns about post-test genetic discrimination. Particular attention is given to predictive testing involving inherited neuro- degenerative conditions and familial cancers. Previous research undertaken by the author4 including selected findings from the Consumer Study within the Australian Genetic Discrimination Project (GDP) 5 are presented and discussed.