Consumer experiences and predictive genetic testing

This paper presents an overview of predictive genetic testing in Australia and reviews key literature regarding the complexity of the decision to undertake predictive genetic testing, including concerns about post-test genetic discrimination. Particular attention is given to predictive testing involving inherited neuro- degenerative conditions and familial cancers. Previous research undertaken by the author4 including selected findings from the Consumer Study within the Australian Genetic Discrimination Project (GDP) 5 are presented and discussed.